Table 5 Headaches over time – Summary pen portraits at baseline, 4 ms and 12 ms (CHESS intervention participants)
ID | Baseline | Cata | 4ms | Cata | 12ms | Cata |
|---|---|---|---|---|---|---|
01 | I will not let headaches rule my life Ok as long as has medication says it doesn’t interfere with life (although it does at times|) | I | I will not let headaches rule my life Nothing’s changed in management or medication | I | I will not let headaches rule my life I don’t think I’ve got a plan at the moment for doing anything particularly different because it’s manageable although it’s not particularly pleasant | I |
08 | I will not let headaches rule my life ‘It slows you down a bit sometimes and you feel that, ‘ oh I can’t be bothered to do that…I’ll leave that to another day’…otherwise I just try and get on with life in general… | I | I will not let headaches rule my life Headaches were worse due to neck problems then better after saw physio. Headaches drinks more water takes more ‘me time.’ Trying mindfulness | I | I will not let headaches rule my life Main change is stress due to family needing support. Everything else the same. Considering getting help with unhelpful thinking | I |
09 | Headaches rule my life Life affected by headaches, worried when has more headaches or more medication | II | I will not let headaches rule my life Optimistic about new preventative tablets | I | Headaches controlled—not ruling my life Headaches have decreased bringing increased confidence.… what I’m trying to do now is push all that into the background and not even think about them and not even think, ‘Oh will I have a headache!’ or you know ‘Am I gonna have a headache?’ or maybe’ I won’t do this cos I might get a headache!’ … that is a bit easier you know when you have less headaches anyway … because there’s very few entries this year compared to the last two years it does you know enable me I think to sort of… yeah just try and sort of forget about it and… mmm… just carry on almost you know as normal as though nothing’s happening and not trying to manage my life around you know the possibilities that I might have a headache or something like that | IV |
15 | Headaches out of control—something needs to change Headaches affecting all areas of life severely | III | Headaches out of control—something needs to change Headaches still as bad, mood has been worse, psychiatrist has added an anti-depressant, neurologist has changed triptan due to tiredness | III | Headaches controlled—not ruling my life Mood much improved by addition of an anti-depressant. Looking at ways they can be more in control and do more activities using tools taught at the intervention. Acceptance, unhelpful thinking, altering lifestyle by drinking more water and accepting more social engagements | IV |
17 | Headaches rule my life Headache rules their life but has caring responsibilities which also impact on their QOL | II | Headaches rule my life Headaches similar, life similar | II | Headaches out of control—something needs to change Not under control, stressful circumstances worsened looking after relative with learning disabilities. Taking more medication headaches worse | III |
19 | I will not let headaches rule my life Even though they have regular headaches they doesn’t let them stop what they’re doing, uses distraction and gets on with their life. Feels they would experience their headaches more if they focussed on it or talked about it | I | I will not let headaches rule my life Similar to baseline | I | Headaches controlled—not ruling my life Adding a triptan has helped them to control their headaches a bit more I mean because I know it’s gonna to be pretty ok after about an hour and then I can go out and if it delays it until the following day I prefer to do that cos you know I can enjoy when I’m going out… so it is… they are better and certainly more manageable and it makes it more flexible if you know what I mean | IV |