Tests and questionnaires | Outcome | T0 | T1 | T2 |
---|---|---|---|---|
General information (patients) | ||||
Demographics | Age, sex, educational level | ● | ||
Medical data | Treatment, medication, disease-specific information, time since disease, complications, comorbidity, etc | ● | ● | ● |
Disease severity | Modified Ranking Scale, Tumour location, NIHSS, etc | ● | ||
Neuropsychological tests (patients) | ||||
Facial expression of emotion: stimuli and tests | Social cognition | ● | ● | ● |
Cartoons Test | Social cognition | ● | ● | ● |
Faux Pas Test | Social cognition | ● | ● | ● |
Hailing Sentence Completion Test | Executive functioning | ● | ● | ● |
Key Search Test of the Behavioural Assessment of the Dysexecutive Syndrome | Executive functioning | ● | ||
Letter Fluency test | Executive functioning | ● | ||
Semantic Fluency test | Language | ● | ||
Adult Reading Test | Premorbid intelligence | ● | ||
Dutch version of the Rey Auditory Verbal Learning Test (15 Words Test) | Verbal memory | ● | ||
Digit Span Test of the Wechsler Adult Intelligence Scale IV | Memory Span, working memory | ● | ||
Trail Making Test | Attention | ● | ||
Vienna Test System reaction time test | Attention, processing speed | ● | ||
Symbol Digit Substitution Test | Processing speed | ● | ||
Questionnaires (patients) | ||||
Dysexecutive questionnaire + Social Scales (DEX, DEX-Soc) | Dysexecutive syndrome | ● | ● | ● |
Interpersonal Reactivity Index (IRI) | Behaviour, social functioning | ● | ● | ● |
Toronto Alexithymia Scale (TAS-20) | Alexithymia | ● | ● | ● |
Life Satisfaction Questionnaire (LSQ-9) | Quality of life | ● | ● | ● |
Utrecht Scale for Evaluation of Rehabilitation (USER-P) | Participation | ● | ● | ● |
Impact on Participation and Autonomy (IPA) | Participation | ● | ● | ● |
the Hospital Anxiety and Depression Scale (HADS) | Anxiety, depression | ● | ● | ● |
Relationship Quality Scale | Relation Quality | ● | ● | ● |
Dutch Multifactor Fatigue Scale | Fatigue | ● | ● | |
RAND-36 Health Survey | General Health | ● | ● | |
Utrecht Coping List (UCL) | Coping | ● | ||
The Dutch version of the BAFQ social scales (BAFQ-SOC) | Social behaviour | ● | ● | ● |
Social Norms Questionnaire-Dutch version (SNQ-NL) | Social behaviour | ● | ||
Dutch version of the Swansea Neurobehavioral Outcome Scale (SASNOS) | Social behaviour | ● | ||
The Dutch version of the Couple Satisfaction Index (CSI) | Relation quality | ● | ||
Goal Attainment Scale (GAS)a | Evaluation Treatment Goals | ●a | ●a | ●a |
Outcome measure | ||||
Dysexecutive questionnaire + Social Scales (DEX, DEX-Socproxy) | Dysexecutive syndrome | ● | ● | ● |
Questionnaires (significant other) | ||||
Interpersonal Reactivity Index (IRI) | Behaviour, social functioning | ● | ● | ● |
Socioemotional Dysfunction Scale (SDS) | Social dysfunction | ● | ● | ● |
Zarit burden interview | Proxy burden | ● | ● | ● |
Relationship Quality Scale | Relation Quality | ● | ● | ● |
The Dutch version of the BAFQ social scales (BAFQ-SOC) | Social behaviour | ● | ● | ● |
Dutch version of the Swansea Neurobehavioral Outcome Scale (SASNOS) | Social behaviour | ● | ||
The Dutch version of the Couple Satisfaction Index (CSI) | Relation quality | ● |